Ewing sarcoma is a malignant tumor of bone and soft tissue that most often occurs in adolescents and young adults . Despite an international coordinated approach, several nuances, discrepancies, and debates remain in defining the standard of care for treating ES . This report is focused on select topics that apply to the management of… Continue reading Consensus recommendations in the management of Ewing sarcoma from the National Ewing Sarcoma Tumor Board
Tag: Pediatric Cancer
Consensus recommendations in the management of Ewing sarcoma from the National Ewing Sarcoma Tumor Board
Ewing sarcoma is a malignant tumor of bone and soft tissue that most often occurs in adolescents and young adults . Despite an international coordinated approach, several nuances, discrepancies, and debates remain in defining the standard of care for treating ES . This report is focused on select topics that apply to the management of… Continue reading Consensus recommendations in the management of Ewing sarcoma from the National Ewing Sarcoma Tumor Board
Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial
Germline genome sequencing in childhood cancer precision medicine trials may reveal pathogenic variants in cancer predisposition genes in more than 10% of children . These findings can have implications for diagnosis, treatment, and the child’s and family’s future cancer risk .
Parents’ expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial
Germline genome sequencing in childhood cancer precision medicine trials may reveal pathogenic variants in cancer predisposition genes in more than 10% of children . These findings can have implications for diagnosis, treatment, and the child’s and family’s future cancer risk .
Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine
A total of 182 parents and 23 adolescent patients participated in Precision Medicine for Children with Cancer (PRISM), an Australian precision medicine clinical trial for high-risk childhood cancer . We analyzed the mixed-methods data comprising measures exploring families’ perceptions and understanding of PRISM’s participant information sheet and consent form (PISCF), and factors associated with understanding… Continue reading Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine
Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine
Abstract Background Precision medicine is projected to become integral to childhood cancer care. As such, it is essential to support families to understand what precision medicine entails. Methods A total of 182 parents and 23 adolescent patients participating in Precision Medicine for Children with Cancer (PRISM), an Australian precision medicine clinical trial for high-risk childhood… Continue reading Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine