21-year-old Samuel Habib has a rare genetic neurodevelopmental disorder, which was diagnosed in 2019 as being caused by mutations in the GNAO1 gene. The disorder is progressive, and individuals can experience dysfunction in their movement, seizures, and swallowing difficulties. Because of his complex needs, Samuel is fully dependent on his family and carers. He uses a wheelchair, without which he would completely lose his freedom, and communicates with an electronic device that generates gestures and speech.